Well I cant believe its may already , but happy to say things are hectic but we are actually not spinning in so many circles and going nowhere. I haven't posted in a while so alot has gone on. Im thrilled to say Miss K(12) meds have been mostly stabilised and I have a different child, we are travelling 1 1/2 hours most weeks to Marcoola to Mind Mattrz Psychology Clinic and Centre for Autism and Miss A (5)has been diagnosed aspergers and major sensory issues as well as Mr K( 2) , we move onto miss diagnosed , Miss B ( 7) next to try and help it out so that makes 5 out of 5 diagnosed, As much as you know it , it still hurts when the diagnosis is made specially when its your babies.
Through my children Im starting to learn alot about my life as a child and why things happened and have alot more understanding.
The pieces are fitting together a little more rather than a scrambled mess. im starting to feel a sense of relief that finally the right door has opened for us although I know whats inside is tough work, this is a journey together and it seems to be fitting the puzzle a little better!
Sunday, May 6, 2012
Thursday, February 16, 2012
The volcano erupts
Well its tiptoeing on eggs shells 24/7 to try and keep a teenage hormonal ASD child in control but sometimes no matter what you do its just not enough to stop the volcano from erupting, like forces of nature their brain has other ideas we have no control over.
We have worked so closely with therapists for calming solutions and interventions but when it comes to the crunch is it really worth it as all that goes out the window when the child in question doesn't want to listen and is completely defiant. It is so upsetting to watch your child bottle up so many feelings and emotions and have no control of their outbursts.
Yesterday the volcano erupted in our house, their was calm before the storm and we had some sort of normality and then its like someone switches on the switch and BANG! My Daughter disappeared ,ran from us when parked at the local supermarket and we searched for her for 20 mins and found her 3km from home in total meltdown mode. Her anger was nothing like I have ever seen before, she had no intentions of calming and no one was going to make her, there was threats of suicide and attacks taken out on other family members, its the time you cant wait for police assistance and they decide to take their time. I sat in a backward bear hug hold for over 30 mins with a kicking, uncontrollable ,60kg child, while the entire neighbourhood stood on their driveways and watched, a few deep breaths and some good self control stopped me from screaming for them to help me for a minute instead of staring and judging the situation and then out of the haziness of it all I felt the lady across the road put her hand on my shoulder and tell me it was all ok and could she help, I couldn't of thanked her enough, finally some compassion in this world somewhere.
The police finally arrived and took over but while changing hands to them I lost grip of her and she attacked my 4 year old and 7 year old and then turned on the police when they restrained her. She was put into the back of their paddy wagon and I haven't seen the hitting, screaming and kicking inside that contained wagon ever before in my life, its quite scary to know that that can come from such a sweet child, I broke down, their isn't answers to any of this that makes sense and im completely at a loss of what to do or where to turn next, I just pick up and keep going and im thankful to have my wonderful husband and friends and family for support.
The police laid an involuntary treatment order which needed to be confirmed by a child psychiatrist within a 6 hour period. then as predicted in the QLD medical system we were brushed off and released.
Nothing makes me more angry and upset than when you put the measures in place and try your hardest to help and know your own child more than the person treating them and its all knocked down because they have the final say! At least I know who to come back on when someone is hurt or ends up in a body bag because that's the extremity of the situation.
Today I had mental health and a influx of doctors ring to follow up and try and fix the situation , we still have the question of maybe having to be contained in CAFTU if another outbust arises, because lets face it they removed the medication and started a new one and released her before we could witness any changes and now we are facing the backlash from it all and she is suffering and at risk to herself and others because of medical negligence. In the meantime we just wait for eruption after eruption every 2 days apart trying to calm the situation before each arises.
Despite all the madness and drama with her, there are some more serious underlying problems going on with my 7 year old ASD/ADHD boy with optical albinism, partial blindness. Haematology/Oncology results for a specialised test to test his bloods came back abnormal and he has a reduced platelet/ white cell count. We have to track back to Royal children's Hospital very early Monday morning for a retest to confirm results and then wait for 1 more week to see the oncology/ Haematology specialist to find out whats going on, this is playing on the back of my mind every day, what's going on with my little boy? why now? why us? :( f it rains it pours!!
We have worked so closely with therapists for calming solutions and interventions but when it comes to the crunch is it really worth it as all that goes out the window when the child in question doesn't want to listen and is completely defiant. It is so upsetting to watch your child bottle up so many feelings and emotions and have no control of their outbursts.
Yesterday the volcano erupted in our house, their was calm before the storm and we had some sort of normality and then its like someone switches on the switch and BANG! My Daughter disappeared ,ran from us when parked at the local supermarket and we searched for her for 20 mins and found her 3km from home in total meltdown mode. Her anger was nothing like I have ever seen before, she had no intentions of calming and no one was going to make her, there was threats of suicide and attacks taken out on other family members, its the time you cant wait for police assistance and they decide to take their time. I sat in a backward bear hug hold for over 30 mins with a kicking, uncontrollable ,60kg child, while the entire neighbourhood stood on their driveways and watched, a few deep breaths and some good self control stopped me from screaming for them to help me for a minute instead of staring and judging the situation and then out of the haziness of it all I felt the lady across the road put her hand on my shoulder and tell me it was all ok and could she help, I couldn't of thanked her enough, finally some compassion in this world somewhere.
The police finally arrived and took over but while changing hands to them I lost grip of her and she attacked my 4 year old and 7 year old and then turned on the police when they restrained her. She was put into the back of their paddy wagon and I haven't seen the hitting, screaming and kicking inside that contained wagon ever before in my life, its quite scary to know that that can come from such a sweet child, I broke down, their isn't answers to any of this that makes sense and im completely at a loss of what to do or where to turn next, I just pick up and keep going and im thankful to have my wonderful husband and friends and family for support.
The police laid an involuntary treatment order which needed to be confirmed by a child psychiatrist within a 6 hour period. then as predicted in the QLD medical system we were brushed off and released.
Nothing makes me more angry and upset than when you put the measures in place and try your hardest to help and know your own child more than the person treating them and its all knocked down because they have the final say! At least I know who to come back on when someone is hurt or ends up in a body bag because that's the extremity of the situation.
Today I had mental health and a influx of doctors ring to follow up and try and fix the situation , we still have the question of maybe having to be contained in CAFTU if another outbust arises, because lets face it they removed the medication and started a new one and released her before we could witness any changes and now we are facing the backlash from it all and she is suffering and at risk to herself and others because of medical negligence. In the meantime we just wait for eruption after eruption every 2 days apart trying to calm the situation before each arises.
Despite all the madness and drama with her, there are some more serious underlying problems going on with my 7 year old ASD/ADHD boy with optical albinism, partial blindness. Haematology/Oncology results for a specialised test to test his bloods came back abnormal and he has a reduced platelet/ white cell count. We have to track back to Royal children's Hospital very early Monday morning for a retest to confirm results and then wait for 1 more week to see the oncology/ Haematology specialist to find out whats going on, this is playing on the back of my mind every day, what's going on with my little boy? why now? why us? :( f it rains it pours!!
Saturday, February 11, 2012
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