Well The things life throws at us , i'm sure god knows who are the stronger people and who can cope better than others because my daily life is like a hurricane, things get thrown at me left right and centre.
For the past 2 years my Autistic daughter kiaras world has spiralled out of control, she has become impulsive, suicidal and has major problems with controlling anger outbursts and meltdowns. We all know ASD is hard to deal with at the best of time without throwing puberty into the mix, think the best way to explain would to be to throw a match into a contained box of firecrackers and wait for the explosions and what the outcome will be, thats pretty much everyday for the past 2 years.
We are so lucky to have out fantastic child psychologist Adam Bear who has been working with our family for the past 6 months on behaviour interventions for children with ASD. We have so many practices in place for meltdowns including charts, rewards, visual clues, Quiet space, punching bags, incentives ect the list could go on forever but when it comes to the punch and the eye of the storm, trying to get an irritable child to listen is an impossibility. Saftey has become a major concern and ive hit breaking point emotionally so manytimes I cant count now, with some things a nerotypical mum would be sent to her grave over :( I guess we learn as we go and our understanding and stress levels cope with what we are dealt with at the time,, don't ask me how as ive given up how many times im asked the question how do we cope? their isnt an answer for that, I wish there was , I wish there was answers for everything but life would be too easy then.
Kiara's safety has become an issue within the last 2 months where hospital inpatient intervention has had to take place, and im sure until we have the answers of what's going on there will be more to come for the safety of herself and others. I have seen the inside of an ambulance and the faces of emergency staff, paramedics and police to many times for my liking and it seems a never ending battle to get answers. Its a never ending check-list of ticking things off and ruling things out, im am happy about the fact during her visit with CAFTU ( child and family therapy unit) speech assessments were done and have provided us with a little insite to her communication difficulties and receptive languguge skills .
what is receptive languge?
Receptive language is the ability to comprehend vocabulary,
directions, concepts and questions. Understanding language also
involves attention, memory and sustained concentration
her abilities during the testing showed very limited skills in this area and very limited understanding, this is still not enough to answer our questions though and still has us baffled to whats going on, so guess its a waiting game of fitting more of the pieces together. More services, more appointments, time and understanding mixed in with alot of stress and anxiety, this is where I insert a big SIGH!!!
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